It’s been awhile since I’ve been on Facebooks “Liver” support group. It’s scaring the shit out of me, honestly. I haven’t been on it lately because there is no need to! Faye is doing perfectly well and I have no questions or anything. But today I went on and it’s so sad cause people post about their child be admitted or their child awaiting transplant…
I feel as if I don’t go on it anymore so I won’t live everyday worrying about when things will go wrong rather than enjoy every moment.
But then there’s a part of me, if I keep pushing it to the side. WHEN the day comes (which I know it will) it will hit me so hard. I am terrified of something happening, having to go back into the hospital, seeing my baby in pain.
There’s so much to having a baby with a rare disease. I am so grateful she is defeating all odds as of now. My sweet baby girl has gone so far! Lets just keep it up, her body is staying strong!